Bilateral CI adventures in France

Later this month I depart on another bilateral CI adventure: we are going to France for a week! We went several years ago, but that was when I was still wearing two hearing aids. The joke then was that I can speak (some) French, but I can't hear. My husband can hear, but he can't speak French!

That time, we went on a tour boat down the River Seine. I found that I caught some things (but not all) as she said each bit in French, then I caught other things (but not all) when she repeated it in English. My husband told me he didn't catch much of the English either. So we found I got more than he did, getting it twice.

Soooooo.... Will it be different this time? You betcha! I've been listening to some "teach yourself French" CDs over the past month, working to train my brain to hear the nuances of the French language. I can sense improvement! I'm still very, very far from "fluent," but I should be able to enjoy a few conversations, anyway.

I've also heard that many places in Europe are wired with loops, that I can access with my t-coil settings. I'm very interested to see (hear) how that works.

As bits and pieces come back to my memory, I'm starting to talk to my self in French. That counts for something, doesn't it??

A New Direction

I posted this on February 27, 2010, on facebook:

When my second ear qualified for a cochlear implant, I was devastated. This was very much not the plan I had for my life. And it has indeed been hard to adjust to this new reality. Working in a preschool classroom is just difficult.

But it has also freed me up to be open to ask God, “What do you have planned for my life? Since I believe this is not a surprise to you, I also believe you have plans that include my deafness. I still have purpose and meaning--open my eyes to see what I should do now...”

If it were not for my hearing loss, I would not have inquired at Alexander Graham Bell Montessori School in January 2002. I would not have taken the Montessori training, would not have learned cued speech to work with the kids with hearing loss, and had the incredible sense of being exactly where God wanted me.

Now my hearing loss has progressed, and I need to move on again. The woman who hired me at AGBMS, Karen Brenner, left soon after to work on developing Montessori work with Alzheimer’s. My mom has been diagnosed with Alzheimer’s this year, and suddenly Karen’s work takes on new meaning.

I’m now pursuing that. The more I read, the more excited I get. I’ve decided to let go of my job teaching preschoolers (at the end of the school year, of course), and see where this new direction will lead. Karen says I can get a job doing something with this concept, using Montessori principles to work with people with Alzheimer’s. I don’t know yet *what* I will do, but I am finding out, one step at a time.

My mom lives two and a half hours away, so I won’t exactly be able to work with her regularly, but she is certainly my guinea pig. I’m taking a course this semester at the community college in adult psychology and aging. I am learning so much there, and in my interactions with my mom and the other residents at her assisted living apartment building.

I don’t know what I’ll be doing in the coming year, or years, but it’s exciting (and a bit unnerving) to take this leap of faith, that this is truly what I am supposed to do as the next big step in my life.

And it’s thanks to my hearing loss.

Church Music and Hearing Loss

I wrote this in response to a leading question from a writer: "What's the point of singing in church?"
(Thanks Michelle! Go read her post here: http://theparablelife.blogspot.com/2010/04/singing-in-key-of-autopilot.html)
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As a musician who has lost the gift of hearing, church music is a very sensitive topic. Yes, I still can hear, thanks to two bionic ears, but it's really not the same. REALLY not the same. So I've given a lot of thought to the concept of church music.

I can still sing by myself, and that's one way not to have to worry about being in tune. I still sound in tune to myself, at least most of the time. And I really do worship that way. Sometimes, of course, I'm just singing for the joy of the music, which is different.

But I really miss congregational singing. With my cochlear implants, music in church (or anywhere) is often mostly kind of mush, or a dull roar. That's really hard. I can no longer learn new hymns or worship songs, or at least not in the context of hearing it sung in church. And the old ones have lost some of their life, with the concept of “melody” being rather negotiable.

At one point in my journey into deafness, I used an FM system with my hearing aids. I got the sound delivered straight into my ears, no distracting environmental noise. And although the sound quality was so much better that trying to understand anything with just my hearing aids, I came to hate it. I felt like I was alone listening to the radio, rather than being in the middle of a worshipping mass of people. Yes, I can worship to (with?) a song on the radio. But it's not the same as being there live and in person, with the music and the **community** flowing around me.

That “distracting environmental noise” was what gave me the sense of being part of something larger than myself. I was in orchestra and choir in high school, and making music in a group was fantastic. But church music is even better, a different *kind* of experience.

If someone is off tune, does it bother me? Well, yeah, sometimes. (Ok, be honest. It used to bother me a lot of the time. Hearing loss has really taken me off my high horse.) But even before I lost my hearing, I came to enjoy it (more)--as part of being in community. I began to learn to listen more to the heart of the person singing, and less to their musical skill. If someone is lost in worship as they sing, that draws me more deeply into worship, too--even if they’re not so very well in tune.

I find that I get impatient with the music sometimes. That’s a really novel experience. When they repeat a chorus yet another time, I’m kind of tapping my foot, ok, are we done yet. I never, *never* thought I would be that way. When I was a musician, I could go on and on and on, caught up in the music. I have much greater sympathy and empathy for people who walk into a church and don’t know the music, aren’t used to singing with people--I mean, where else to ordinary, non-musician people sing together on a weekly basis?

I should probably develop this into a carefully crafted essay. For right now I am posting this rather unedited version.

Revising Me

From my friend's blog as he looks for work, revising his resume: "I revise because I am being revised." That statement fairly sums up my life of the past 10 years, as I have lost my hearing. I launched my second job change this past week, because *I* am being revised. For me, working with small children is turning out to be incompatible with having two cochlear implants. This feels somewhat like a precious thing is being ripped out of my heart, so it's been a rough week. I have had to do the work of grieving what can no longer work.

But by Friday, having sat with my cup of tea each day and wept honestly before God, I finally woke up in peace. This is not to say I will not weep over any more cups of tea on this topic. As I walk towards the end of the school year with my little students, more tears will flow. But for now, in this moment, on this day, I have peace.

I am truly excited about the new opportunity before me, and accepting that I would likely never have headed in that direction if it were not for my hearing loss. So, with one hand, the hearing loss has ripped out a piece of my heart; with the other it is giving me a gift of a new joy for my heart.

Yes, I am being revised. And yes, it is intoxicatingly freeing to seek what new thing God has for me now.

(here's my friend Dave's original post: http://davelooksforwork.wordpress.com/2010/02/24/revision/ )

Reply to Someone Else's Cold Feet

A participant on HearingJourney.com, the Advanced Bionics online support community posted she was having cold feet about going bilateral. I've had a lot of thoughts going through my head lately about going bilateral myself. This is my reply to her.

I haven't been saying much on HJ lately, but I'm reading many, many of the posts. I had cold feet about a second implant from the day I qualified. It was a wrenching journey of grieving my hearing loss. I wanted to keep that ear so so so badly! But I had no guarantee that it wouldn't quit totally on me eventually, likely sooner rather than later. It took me three months to say, "ok, you can pencil me in." (I have a really wise and compassionate audiologist!) It took another three months, up until 24 hours before my surgery day, to feel emotionally ready.

I'm a musician born and bred; it runs in my blood. My first implant was an incredible gift! I could understand the words, and I could pick up the melody ok, and I could find pitch with the natural hearing in my remaining ear. I have some amazing and wonderful music stories from my first implant; some are posted here in the Recipient Stories section. Letting go of that sense of natural pitch was the wrenching part of getting the second implant. I knew I would hear speech better and have greater comprehension of what I heard. That has been truly the case.

But. Music is hard. So much of the time it is a roaring mush, with bits of pitch change thrown in. If it's a single instrument or voice, I hear it beautifully! But that almost never happens, especially in church. I tested my second implant on one of these musical websites that gives you a few measures played by a single instrument. Two weeks after activation,with just the second CI, I got 11 out of 14 correct! I can indeed tell the difference between a violin, a viola, a cello, and a bass. (I played viola.) I can tell the difference between a clarinet, an oboe, and a bassoon. Listening to Peter and the Wolf is loads of fun! But my enjoyment of the worship songs at church is very limited, and on new songs I kind of make up my own melody to go with the rhythm I can hear and the bits of modulation I can discern. Some days that's enough; some days it's incredibly painfully sad.

So do I regret getting the second implant? No. Really, really, NO! I greatly appreciate having some directionality; I love being able to walk on either side of a friend and chat and have it not matter because I can hear from either side. I love the crispness and richness sound has with both ears that it doesn't have with just one or the other.

What I "regret" is that my ears quit and I have gone deaf. So my grief is not the fault of the CI's. It's the failure of my physical ability for auditory processing. The CI's ameliorate that SO much; but they don't give me back everything I lost. And they never could and they never can. They can give me back a lot, and my life is so much richer and fuller than it was with hearing aids! But I really do miss my music.

Does that help any with your cold feet? What helped me was friends around me that let me cry when I was sad or afraid or angry, and loved me and hugged me and walked with me through those awful 6 months before I got the second CI. You have to be where you are, and you need people around you who will support you in that journey. Each person's journey is unique. But love and prayer are applicable to everyone's journey!

Sorry this got so long. But I've needed to say this all for a while.

PS I was also scared to death of no hearing at all when I would take off the processors. But that's not been so bad.
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Liz H - www.liz.hupp.com
late deafened adult; first pair HA's at age 33.
Left CI-Auria HiRes 3/2006; upgrade to Harmony 2007
Right CI surgery 7/3/2008; activated 7/11/2008

One Ear Versus Two

I read this recently on an AB cochlear implant forum, and it is the best word picture I have heard yet to describe the difference between hearing with one ear versus two:

"Hearing with two ears is like seeing with two eyes: Depth perception. The world becomes three-dimensional and you're right in the middle of it, not flat like it is with one ear. Hearing with only one ear always made me feel like I was listening to books on tape: Interesting story, but not one I felt a part of. Stereo is 3-D. You are IN the action." (Thanks, Maggie!)

Travel Hearing Stories

We flew from Chicago to Tokyo yesterday. Eleven hour flight. But it was nice to take off my ears when it was time to nap.

For the first time, I tried using my Panasonic noise-canceling headphones to listen to the movie. (It was captioned, but in Japanese!) I heard adequately well, probably as well as anybody else with the free in-flight headphones. There were four movies; I only watched two: New In Town and Monsters vs Aliens. It was fun.

The interesting thing with the noise canceling function on is how much better I can hear my husband talk to me, even though sound is muffled by the headphones. Never thought of that.

Going through customs was unnerving, given I don't speak a word of Japanese. And they are conditioned to speak softly, so I was very worried about hearing those who do speak Japanese. Everything was fine; they waved us through. I figured out how to buy the right ticket to get us into Tokyo from the airport, then figure out our hotel was actually near the airport rather than in Tokyo, and get a refund for the $90 we'd spent on the train tickets.

What a relief it was to settle into our hotel room! Joe fell asleep immediately. I went to the little convenience store in the lobby to get some dinner (a bowl of fruit and some potstickers). And I learned how to say thank you in Japanese. It brings such a smile to people's faces when you just try.